Meet the Visionaries
Every person living with low vision encounters unique experiences and challenges.
The Visionaries are an inspiring group of people living, or supporting loved ones, with low vision.
Here we share their unique realities of life with low vision.
Roche and Retina International are proud to present these true stories
Get to know our Visionaries and their stories
Joe and Jill
Travel and independence
Hobbies and community
Tom and Sandy
Day by day
Jess: Emotional wellbeing
Introduction to the podcast and guests0
The impact of a DME diagnosis151
Screening and early detection471
Management journey and stigma: language matters867
COVID-19 and living with diabetes1380
The importance of support1727
Hopes for the future1917
Summary of discussions and closing2140
Glossary – defining the terms
Age-related Macular Degeneration (AMD) can happen when aging causes damage to the macula, responsible for central vision. AMD progresses slowly over time, though the speed can change according to which type of AMD you have.
Dry AMD refers to the thinning of the macular as you age, affecting the cells responsible for seeing in colour and can result in challenges seeing in low lighting.
Wet AMD refers to late-stage AMD and occurs when new blood vessels leak fluid or blood at the back of the eye, causing damage to the macular. This can mean that straight lines may appear to look wavy in central vision, colours less bright and hallucinations.
Healthcare professionals refer to the condition AMD as `neovascular', 'wet' or 'dry' depending on the type and stage of AMD, which are all correct medical terms. 'Wet' and 'dry' are widely recognised by the patient community so are used across Visionaries materials. In some instances, patients may use more medically recognised terminology like 'neovascular'.
Diabetes-related macular edema (DME) is a common cause of low vision in people living with diabetes and results in a condition similar to wet AMD, affecting central vision. DME can severely impact a person's quality of life by limiting the ability to perform daily tasks, increase loneliness and affect mental health. It is the leading cause of low vision among working-age people in the Western world.
Healthcare professionals refer to diabetes-related low vision conditions as `diabetic macular edema’ and `diabetic retinopathy’, which are the correct medical terms for these separate conditions. The patient community prefers to not use the term `diabetic’ for several reasons, so we might refer to the conditions as `diabetes-related’. Please note that we are describing the same conditions.
…stay tuned for more realities, experiences and tips from our community of Visionaries
Supporting his wife of over 40 years to stay independent despite low vision